Advancing Autism Research / Evidence / Knowledge / Global CollaborationA specialized research center within GRS Group
Global Autism Research Center
RESEARCH SERVICE / GARC

Data, Indicators & Benchmarking

Measurement and comparison for strategic understanding.

Researchers reviewing data on a screen
GARC / RESEARCH

What GARC can deliver

Measurement and comparison for strategic understanding.

Potential outputs

Indicator frameworks, benchmarking, data reviews

Who it is for

Public institutions, universities, research organizations, foundations and specialist organizations with a defined evidence or research need.

Method and governance

Each engagement begins with a defined question and scope. Appropriate methods, source transparency, quality review, data protection and required ethics approvals are agreed before implementation.

SERVICE APPROACH

From question to deliverable

The scope and proposed output are agreed before research begins. The work is presented as a capability, not a claim of a completed GARC commission.

01

Define before counting

Indicators need a purpose, numerator, denominator, source, collection frequency and owner. The same label can hide different definitions across countries or institutions.

02

Comparable data

A benchmarking plan assesses coverage, missing data, age groups, reporting periods and changes in methodology before comparing results.

03

Useful interpretation

The deliverable pairs an indicator dictionary and visual reporting with plain-language limitations and a process for updating the data.

WORKFLOW

How an engagement is governed

The details vary by project, but the decision gates remain explicit.

01

Scope and proposal

Agree the question, audience, deliverables, timeline, access needs and review responsibilities in writing.

02

Ethics, data and rights

Assess whether human-participant approval is needed, define data handling and agree authorship, intellectual property and publication conditions.

03

Review and use

Review the draft for accuracy, limitations and accessibility before release; agree how the output will inform a real decision or next research step.

SCOPING EXAMPLE

Example scoping question

A practical way to define the engagement before work begins.

01

A starting question

Can two institutions compare access or outcomes when they use different definitions, collection periods and reporting systems?

02

A possible output package

Indicator dictionary, data-quality review, comparison rules, visual reporting specification and update plan.

03

What is agreed at the outset

The parties agree the final scope, method, review, responsibilities, timeline and permitted use before any commitment is described as an active GARC project.